Explore Resources:
Education and Perspectives
Here you will find resources to further delve into the aspects of Dementia, for the patient, caregiver, and other aspects.
See below for articles from AARP, Podcasts, leading Associations, and more.
Also listed are some personal perspectives and tips from others.
Further down you will find resources on what is referred to as Sundowning and Wandering.
EDUCATION
Dementia vs Alzheimer’s:How to understand the difference - and why it matters.
AARP
Alzheimer's Association Online Education Webinars
Alzheimer’s Association
Dementia Road Map
Dementia Action Collaborative of Washington State
The Dementia Care Partner Podcast
Teepa Snow
Caring For Those With Dementia
Social Care Institute for Excellence
Advanced Dementia: A Guide for Families
Institute for Aging Research, Harvard Affiliate, et al
The Washington Talking Book & Braille Library (WTBBL)
A Program of the WA State Library
Resources For Older Adults
King County Library System
Atypical Dementia - A Book Exploring Lived Experiences
Jamie Talan
The terms “dementia” and “Alzheimer’s” have been around for more than a century, which means people have likely been mixing them up for that long, too. But knowing the difference is important.
Free live learning webinars from the Alzheimer's Association offer real-time conversation, information, education and resources on a variety of brain health, dementia and caregiving topics. Register for an upcoming virtual learning program today.
The Dementia Action Collaborative (DAC), is a statewide group of public-private partners committed to preparing Washington state for the growth of people with dementia.
This WA state-specific “roadmap” was developed to provide family caregivers with information about Alzheimer’s and dementia, and what to expect over time, to help them plan. Available online and in print (n English and Spanish).
The Dementia Care Partner Talk Show is a podcast to help you navigate the senior care maze. "Learn and laugh with us as we discuss creative solutions and ideas to common and uncommon dementia care challenges, and how to make sense of the senior care industry and options even if you're not a professional.”
This abridged dementia resource provides an overview of guidance and information for anyone supporting people with dementia.
This guide is to provides information to the family members and individuals responsible for making health care decisions for patients with advanced dementia. Developed by health care professionals, including geriatricians, nurses, palliative care specialists, and medical researchers, based on their clinical experience and the latest research in the field of advanced dementia as well as family members of patients with advanced dementia.
A free library service to anyone in Washington who has difficulty using regular print materials because of a visual, physical, or cognitive limitation, or a temporary or permanent reading disability providing books and magazines in audio and braille formats. All materials are sent free by mail, or can be downloaded to a smart phone or tablet. For more information call 1-800-542-0866 or email wtbbl@sos.wa.gov or Click here
Caregiving by KCLS_Older_Adults - a staff-created list : Caregiving was one of the hottest topics at the latest White House Conference on Aging. Paid and unpaid caregivers experience a variety of stressors unique to this difficult yet often rewarding work. Check out these companion guides for your caregiving journey.
Author Jamie Talan presents a broad overview of atypical dementias such as FTD by exploring the lived experiences of families affected by a diagnosis, and by sharing her own experiences. Talan also tells the stories of many prominent researchers who made key breakthroughs, including AFTD Medical Advisory Council members Bruce Miller, MD, and M.-Marsel Mesulam, MD.
PERSPECTIVES
Do Seasonal Changes Affect Those Living with Dementia?
Positive Approach to Care
Why I limited news exposure for my mother, who had Alzheimer’s
Alzheimer's News Today
As the autumn season soon begins for those of us in the northern hemisphere and the weather turns colder, do you welcome the cooler temperatures or dread the arrival of winter? Arnie Beresh and Steve Kavli talk about these topics, and if their feelings about changing seasons have shifted at all since dementia came into their lives.
My mother’s battle with Alzheimer’s disease ended more than 10 years ago. I miss her, but don’t get me wrong: Given the choice, I wouldn’t bring her back. She’s in a better place where her mind is crystal clear.
Book: I'm Still Here: A New Philosophy of Alzheimer's Care
John Zeisel
A glass-half-full look at Alzheimer's that reveals how to connect with someone. The popular perception of the disease is that people who receive an Alzheimer's diagnosis are lost to themselves and to those who love them-and that they have no future. But as John Zeisel, makes clear in this book, this view is wrong.
Book: I'm Still Here: A New Philosophy of Alzheimer's Care
John Zeisel
Our mission is to guide people in preparing for the final days of their lives. Those who are terminally ill and wish to use the Washington Death with Dignity Act can count on our volunteers to provide compassionate support throughout the entire process.
Some US airports strive to make flying more inclusive
AP
Nearly a dozen airports — from Phoenix to Kansas City, Missouri — in the last few years have modified their facilities and operations to be more dementia-friendly. They’ve added amenities like quiet rooms and a simulation center where travelers with dementia can learn about flying or get a refresher.
SUNDOWNING and WANDERING
Sundowning is a phenomenon commonly observed in dementia patients, where their symptoms, such as confusion, agitation, and restlessness, tend to worsen during the late afternoon and early evening hours. This can lead to increased behavioral and psychological challenges for both the patients and their caregivers. Wandering, on the other hand, is a behavior in dementia patients characterized by aimlessly moving about with no clear purpose or destination. It can occur at any time of day and may be a response to restlessness, confusion, or a desire to explore. Both sundowning and wandering can be distressing for caregivers and require special care and management strategies to ensure the safety and well-being of dementia patients.
Alzheimer's Association
Alzheimer's Foundation of America
UCLA Health
Alzheimer's Association
National Institute on Aging
National Institute on Aging
UCLA Health