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African Americans Against Alzheimers
AfricanAmericansAgainstAlzheimer’s is the nation’s first organization dedicated to building a coordinated national response to eliminate and address Alzheimer’s disease (AD) among African Americans. The fourth leading cause of death for older African Americans, AD has a disparate impact on African Americans.
https://www.usagainstalzheimers.org/networks/african-americans
Alzheimers.gov
Your destination for dementia information, resources, and research.
If you know someone with Alzheimer's disease or have been diagnosed yourself, this is your community. Alzheimers.net grew out of the need to have a social network that will be a respite, a resource and a way to connect with others who share a common bond. Get authoritative, up-to-date resources and advice from professionals with expertise about Alzheimer’s disease and related dementias.
Alzheimer's Association
Formed in 1980, the Alzheimer's Association is the leading voluntary health organization in Alzheimer's care, support and research.
Alzheimer’s Caregiver Network
We are an independent not-for-profit 501(c)(3) organization that works to positively impact the lives of those caring for people with Alzheimer’s disease.
https://alzheimerscaregivers.org
Alzheimer's Foundation of America
The AFA has activities happening almost every day in their online Teal Room.
The Association for Frontotemporal Degeneration
AFTD’s mission is to improve the quality of life of people affected by FTD and drive research to a cure. We work every day to advance:
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Research. We promote and fund research toward diagnosis, treatment and a cure.
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Awareness. We stimulate greater public awareness and understanding.
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Support. We provide information and support to those directly impacted.
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Education. We promote and provide education for healthcare professionals.
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Advocacy. We advocate for research and appropriate, affordable services.
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https://www.theaftd.org/about-us/mission-statement/
Centers for Disease Control and Prevention: Alzheimer's disease and Healthy Aging
https://www.cdc.gov/aging/index.html
Dementia Friend
What is a Dementia Friend?
You are a Dementia Friend after you attend an in-person or virtual Dementia Friends Information Session. At the information session, you learn more about five key messages about dementia so that you can share with others. We invite you to commit to a small action step to support people living with dementia in your community - such as being more patient, taking a meal to a caregiver, or driving a friend to a doctor’s appointment.
Who can be a Dementia Friend?
Anyone of any age can be a Dementia Friend. We need everyone to be part of supporting people in our communities living with dementia.
How do I become a Dementia Friend?
Attend an information session either in-person or online.
https://depts.washington.edu/mbwc/resources/dementia-friends-wa
Dementia Society of America
Mission: To enhance the quality of life for those living with Dementia, caregivers, and the community!
Educate, Provide and Recognize
https://www.dementiasociety.org
Family Caregiver Alliance (FCA)
FCA support and assists families and caregivers through education, advocacy and services. In addition to providing training to technical assistance to California’s Caregiver Resource Centers, FCA hosts the National Center on Caregiving (NCC). The NCC serves as a central source of information on caregiving and long-term care issues and works to advance policies and programs for caregivers in every state in the country.
CareNav is a simple, user-friendly tool designed to help families navigate the complexities of the caregiving journey. Register online or call us toll-free at 800.445.8106.
www.caregiver.org/connecting-caregivers/fca-carenav/
Health AdvocateX
HealthAdvocateX is a national organization committed to helping you transform into an active participant in your care. We are committed to helping everyone understand what health advocacy is, how to boost health advocacy skills and knowledge regardless of who you are. While we do not provide direct health advocacy services, we can connect you with people who do. We specialize in inspiring people to take action through community education, health advocacy events and by connecting you to trusted health advocacy resources.
https://www.healthadvocatex.org/
International Association for Indigenous Aging
501(c)3 nonprofit focused on improving the health and well-being of American Indians, Alaska Natives and other indigenous people as they move through the aging spectrum. - Dementia Friends Rooms Experience
https://iasquared.org/dementia-friends/rooms/
Johns Hopkins Medicine
Dementia overview, symptoms, types
https://www.hopkinsmedicine.org/health/conditions-and-diseases/dementia
Lewy Body Dementia Association
Through outreach, education and research, we support those affected by Lewy body dementias, their families and caregivers. We are dedicated to raising awareness and promoting scientific advances.
National Institute of Health: National Institute on Aging
AfricanAmericansAgainstAlzheimer’s is the nation’s first organization dedicated to building a coordinated national response to eliminate and address Alzheimer’s disease (AD) among African Americans. The fourth leading cause of death for older African Americans, AD has a disparate impact on African Americans.
Rosalynn Carter Institute for Caregivers
The Rosalynn Carter Institute for Caregivers promotes the health, strength, and resilience of caregivers throughout the United States. Established in 1987 by former First Lady Rosalynn Carter, the Institute’s priority is the unpaid family caregiver: those individuals who care for a relative, friend, or loved one. To learn more about RCI, its advocacy, how to participate in programs or build a partnership, visit www.rosalynncarter.org.
http://www.rosalynncarter.org/
Sage
We’re a national advocacy and services organization that’s been looking out for LGBT elders since 1978. We build welcoming communities and keep our issues in the national conversation to ensure a fulfilling future for all LGBT people.
U.S. Department of Veterans Affairs
Dementia Care (including Alzheimer’s Disease)
https://www.va.gov/GERIATRICS/pages/Alzheimers_and_Dementia_Care.asp